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Pediatric Home Care [electronic resource]: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983

Lu Ann Aday, Ronald M. Andersen
Format
Computer Resource; Online
Published
Ann Arbor, Mich. Inter-university Consortium for Political and Social Research [distributor] 1989
Edition
1992-02-16
Series
ICPSR
ICPSR (Series)
Access Restriction
AVAILABLE. This study is freely available to ICPSR member institutions.
Abstract
This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.Cf: http://doi.org/10.3886/ICPSR08948.v1
Contents
  • Main Questionnaire - Key Informant Interview
  • Main Questionnaire - Key Informant Interview Record Layout
  • Main Questionnaire - Key Informant Interview Frequencies
  • Main Questionnaire - Patient (Caregiver Interview) File
  • Main Questionnaire - Patient (Caregiver Interview) File Record Layout
  • Main Questionnaire - Patient (Caregiver Interview) File Frequencies
  • Specialty Coding - Open Ended Questions
  • Specialty Coding - Open Ended Questions Record Layout
  • Specialty Coding - Open Ended Questions Frequencies
  • Additional Conditions of the Child
  • Additional Conditions of the Child Record Layout
  • Additional Conditions of the Child Frequencies
  • Hospital Stay
  • Hospital Stay Record Layout
  • Hospital Stay Frequencies
  • Patient Level - Constructed Variables
  • Patient Level - Constructed Variables Record Layout
  • Patient Level - Constructed Variables Frequencies
  • Hospital Level - Constructed Variables
  • Hospital Level - Constructed Variables Record Layout
  • Hospital Level - Constructed Variables Frequencies
  • Caregivers In-Home - Constructed Variables
  • Caregivers In-Home - Constructed Variables Record Layout
  • Caregivers In-Home - Constructed Variables Frequencies
  • Caregivers Outside-Home - Constructed Variables
  • Caregivers Outside-Home - Constructed Variables Record Layout
  • Caregivers Outside-Home - Constructed Variables Frequencies
  • Cost Analysis - Subset of 36 Children
  • Cost Analysis - Subset of 36 Children Record Layout
  • Cost Analysis - Subset of 36 Children Frequencies
  • AHA Hospital Characteristics
  • AHA Hospital Characteristics Record Layout
  • AHA Hospital Characteristics Frequencies
Description
Mode of access: Intranet.
Notes
Title from ICPSR DDI metadata of 2016-02-11.
Series Statement
ICPSR 8948
ICPSR (Series) 8948
Other Forms
Also available as downloadable files.
Copyright Not EvaluatedCopyright Not Evaluated
Technical Details
  • Staff View

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    a| MiAaI c| MiAaI
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    0
    0
    a| Pediatric Home Care h| [electronic resource] b| Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983 c| Lu Ann Aday, Ronald M. Andersen
    250
      
      
    a| 1992-02-16
    260
      
      
    a| Ann Arbor, Mich. b| Inter-university Consortium for Political and Social Research [distributor] c| 1989
    490
      
      
    a| ICPSR v| 8948
    516
      
      
    a| Numeric
    538
      
      
    a| Mode of access: Intranet.
    500
      
      
    a| Title from ICPSR DDI metadata of 2016-02-11.
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    a| Georgetown University. Center for Child and Human Development
    536
      
      
    a| United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau c| MCJ PHS 173363-03-3, and MCJ 113806-0
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    a| AVAILABLE. This study is freely available to ICPSR member institutions.
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    a| Also available as downloadable files.
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    a| United States
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    3
      
    a| This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.Cf: http://doi.org/10.3886/ICPSR08948.v1
    505
      
      
    t| Main Questionnaire - Key Informant Interview
    505
      
      
    t| Main Questionnaire - Key Informant Interview Record Layout
    505
      
      
    t| Main Questionnaire - Key Informant Interview Frequencies
    505
      
      
    t| Main Questionnaire - Patient (Caregiver Interview) File
    505
      
      
    t| Main Questionnaire - Patient (Caregiver Interview) File Record Layout
    505
      
      
    t| Main Questionnaire - Patient (Caregiver Interview) File Frequencies
    505
      
      
    t| Specialty Coding - Open Ended Questions
    505
      
      
    t| Specialty Coding - Open Ended Questions Record Layout
    505
      
      
    t| Specialty Coding - Open Ended Questions Frequencies
    505
      
      
    t| Additional Conditions of the Child
    505
      
      
    t| Additional Conditions of the Child Record Layout
    505
      
      
    t| Additional Conditions of the Child Frequencies
    505
      
      
    t| Hospital Stay
    505
      
      
    t| Hospital Stay Record Layout
    505
      
      
    t| Hospital Stay Frequencies
    505
      
      
    t| Patient Level - Constructed Variables
    505
      
      
    t| Patient Level - Constructed Variables Record Layout
    505
      
      
    t| Patient Level - Constructed Variables Frequencies
    505
      
      
    t| Hospital Level - Constructed Variables
    505
      
      
    t| Hospital Level - Constructed Variables Record Layout
    505
      
      
    t| Hospital Level - Constructed Variables Frequencies
    505
      
      
    t| Caregivers In-Home - Constructed Variables
    505
      
      
    t| Caregivers In-Home - Constructed Variables Record Layout
    505
      
      
    t| Caregivers In-Home - Constructed Variables Frequencies
    505
      
      
    t| Caregivers Outside-Home - Constructed Variables
    505
      
      
    t| Caregivers Outside-Home - Constructed Variables Record Layout
    505
      
      
    t| Caregivers Outside-Home - Constructed Variables Frequencies
    505
      
      
    t| Cost Analysis - Subset of 36 Children
    505
      
      
    t| Cost Analysis - Subset of 36 Children Record Layout
    505
      
      
    t| Cost Analysis - Subset of 36 Children Frequencies
    505
      
      
    t| AHA Hospital Characteristics
    505
      
      
    t| AHA Hospital Characteristics Record Layout
    505
      
      
    t| AHA Hospital Characteristics Frequencies
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    a| Ventilator-assisted children in the United States.
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    7
    a| assisted living 2| icpsr
    650
      
    7
    a| children 2| icpsr
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    7
    a| home health care 2| icpsr
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    7
    a| program evaluation 2| icpsr
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    7
    a| quality of life 2| icpsr
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    a| ICPSR IX. Health Care and Health Facilities
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    2
      
    a| Aday, Lu Ann
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    2
      
    a| Andersen, Ronald M.
    710
    2
      
    a| Inter-university Consortium for Political and Social Research.
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    a| ICPSR (Series) v| 8948
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    w| WEB l| INTERNET m| UVA-LIB t| INTERNET
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